Minister of Tribal Affairs, Shri Arjun Munda, inaugurated the Second National Sickle Cell Conclave on the occasion of World Sickle Cell Awareness Day 2021 on June 19.
The aim of the webinar is to increase awareness in the community, the global burden of the Sickle Cell Disease (SCD) disorder and its prevalence in India.
About National Sickle Cell Conclave:
- The National Sickle Cell Conclave is held to mark world Sickle Cell Day every year.
- It was organized by Ministry of Tribal Affairs in association with Federation of Indian Chambers of Commerce & Industry (FICCI), Apollo Hospitals, Novartis, Piramal Foundation etc.
- The flagship event will bring together top government officials, stakeholders including Ministry of Tribal Affairs, FICCI, Novartis, Apollo Hospitals, Piramal Foundation, GASCDO, NASCO.
- The event will also include experts and clinicians to discuss ways and means to enhance awareness, prevention and management initiatives especially among women and children along with recent advances in SCD management.
- The program will include a panel discussion featuring leading clinicians, advocates and policy makers who are focused on delivering high-quality healthcare to people living with SCD.
- The conclave will visualize a roadmap for streamlining guidelines and for effective management of sickle cell disease through Continuum of Care approach in India.
SCD in India:
- SCD is widespread amongst many tribal population groups in India.
- Several cost-effective interventions have reduced morbidity and mortality from SCD in India.
- However, access to care for SCD in tribal regions limited.
- SCD is prevalent predominantly in Jharkhand, Chhattisgarh, western Odisha, eastern Gujarat Madhya Pradesh, Maharashtra, Nilgiri Hills of north Tamil Nadu and Kerala.
About Sickle cell disease (SCD):
- Sickle cell anemia is a genetic red blood cell disorder.
- According to mayoclinic.org. people with sickle cell disorders don’t have enough healthy red blood cells to carry oxygen throughout the body.
- SCD is a group of blood disorders that affect a person’s red blood cells.
- It is a genetic condition that is passed on from parents.
- The disorder causes normal round and flexible blood cells to become stiff and sickle shaped, which in turn stops the blood cells and the oxygen they carry from moving freely around the body.
It can be managed by simple procedures including:
- High fluid intake
- Healthy diet
- Folic acid/Iron supplementation
- Pain medication
- Vaccination and antibiotics for the prevention and treatment of infections
- A number of other therapeutic measures.
World Sickle Cell Awareness Day 2021:
- World Sickle Cell Day, observed every year on June 19.
- The United Nations General Assembly adopted a resolution to recognize sickle cell disease as a public health problem on December 22, 2008.
- The main aim of observing this day is to raise awareness of sickle cell disorders.